February 24, 2020
Juvenile Idiopathic Scoliosis – What is it?
When your child gets diagnosed with Scoliosis it can be overwhelming. There is a lot of information to gather and process. Knowing where to start can be tricky. Researchers know that untreated adolescent idiopathic scoliosis (AIS) can cause significant deformity. Researchers do no agree on the psychological or psychosocial effects of the deformity.
There is so much information about Scoliosis on the Internet. Where do you start? In our clinic we see lots of families that had not even heard of Scoliosis until this diagnosis for their child. The words ‘exercise’, ‘manipulations’, ‘surgery’, ‘bracing’ and many others may start to be thrown around, and it’s easy to not know where to start.
First of all, it is important to know that there are two major organisations providing guidelines regarding treatment options. The Society of Scoliosis Orthopaedic and Rehabilitation Treatment (SOSORT) is one of these organisations. The Scoliosis Research Society (SRS) is the other one. In a nutshell, SOSORT provides guidelines regarding bracing and therapy options. They recommend that the team of people you should have include a physician, a physiotherapist who specialises in scoliosis, an orthotist (if a brace is needed) and in some cases a psychologist. The SRS is s a good source of information too, particularly if you are considering surgery.
Some of the decisions that need to be made, and questions that need to be asked, include:
It can be hard to sift through the information. Although social media sites can be very supportive, they can also be a source of confusion. Strategies that suit one family or child may not suit another. Making sure your team of health professionals around you are dedicated to the treatment of scoliosis can be a good starting point. Some final take home tips include:
For those parents just starting out on the journey, it can be stressful. If you want to confirm a few things you already know, we have devised a short seminar after an invitation to join the highly regarded team of professionals at Scoliosis and Spine Online Learning. This seminar is a short (less than 20 minutes) introduction into the world of scoliosis, helping with you with starting points. You can rent the video for 3 days from this link https://ssol1.vhx.tv/products/family-education-seminar-1
Please do not hesitate to contact us if you have any questions.